Scientific Publications

This paper examines how European countries are preparing for the European Health Data Space (EHDS), focusing on public health. Through the xShare project, it highlights best practices, challenges, and the role of citizen empowerment in enabling safe data sharing to support better health outcomes.

This paper presents different use cases that are made possible by the personal health twins and reflects on relevant challenges and opportunities, debating whether ethical and privacy concerns can overcome the benefits of personalized precision medicine powered with the dynamic real-time feedback to digital twins.

This study aims to evaluate the European Patient Summary guidelines and their implementations, specifically the HL7 FHIR International Patient Summary Implementation Guide, to determine their suitability for secondary use in clinical research. The focus is on identifying gaps and extensions needed to enhance the utility of the European Patient Summary for building artificial intelligence models in assisting heart failure management.

This paper introduces a mobile framework designed to enhance citizen access to and sharing of health data, aiming to empower individuals with greater control over their personal health information. It addresses the challenges posed by the fragmented nature of healthcare services and the barriers of language differences in patient records.

The effective and meaningful exchange of data is pivotal for patient care, informed decision-making, and advancements in research and technology. This opinion piece explores the critical role of semantic interoperability (SI) in ensuring meaningful health data sharing across diverse systems.