Citizens (Patients)
The European Health Data Space (EHDS) is opening new frontiers in healthcare by enabling the use of real-time data and advanced technologies such as personal Digital Twins. These innovations have the potential to transform research and support more precise, personalised care.
By empowering individuals to securely share their data through tools like the xShare Yellow Button, EHDS creates the conditions for new applications and insights, while also raising important questions around ethics, privacy, and responsible data use.
Resources
The xShare Yellow Button Webpage
The xShare Yellow Button is a simple tool that allows individuals to share their health data securely with a single click, using the European Electronic Health Record Exchange Format (EHRxF). (xShare)
It empowers citizens to control their data and easily share it with healthcare providers or services, supporting interoperability, innovation, and the goals of the European Health Data Space. (ticsalutsocial.cat)
Yellow Button Adoption Kit Deck
The xShare Yellow Button enables individuals to securely access and share their health data with a single click, using a standardized European format that ensures interoperability across systems.
It empowers citizens to take control of their health information, making it easier to share data with healthcare providers, access second opinions, and support better, more connected care across Europe.
Toolbox for GDPR Data Portability
The xShare toolbox supports the implementation of health data portability under GDPR by providing practical tools, standards, and guidance for secure and compliant data sharing.
It helps organisations enable individuals to access, reuse, and transfer their health data more easily, strengthening user control while ensuring interoperability and regulatory compliance.
xShare-Powered Personal Digital Twins: End of Privacy or Key to Precision Health?
The growing availability of real-time health data and affordable computing is enabling the development of personal Digital Twins, offering new possibilities for research and precision medicine.
Within the European Health Data Space, the xShare Yellow Button allows individuals to securely share their data with selected applications, supporting these innovations while raising important ethical and privacy considerations.
What Cybersecurity risks arise from increased interoperability and how can they be addressed?
XiA Open Learning Session #1 Cybersecurity